Dad's Hands

I just spent a weekend with my parents.  My father has dementia related to his Parkinsons and the disease has progressed to the point where his words don't really make much sense any more.  There are rarely full sentences and never two sentences in a row that go together.  Conversation is non-existent because meaningful exchange is not possible.  The type of dementia he has eats away at his brain, leaving the equivalent of holes, robbing him of his ability to string coherent thoughts together.  That's the best lay explanation I can come up with.

However there are occasional moments of lucidity when he is grasping for words - when he is desperately trying to express something.  At one such point I said, "Dad, is it frustrating to want to say something and not be able to find the words?"  He looked at me with his eyes wide open and clear and said, "YES!"  He was there with me just for a moment. And then he returned to unrelated words, strange hallucinations, anxiety and mood swings.

Towards the end of my visit, as I was leaving in fact, I knelt down in front of his wheelchair, laid my hands over his which were crossed on his lap, and looked in his eyes.  "Dad, I'm leaving now.  I'm going back to Seattle to be with Dan, Sarah and Julia.  I love you, Dad.  I have enjoyed our visit and I'll miss you - but I'll be back...  I love you, Dad."  He looked at me hard as if he was trying to follow, trying to grasp the meaning of my words, trying to find this familiar place that is becoming more and more distant for him as his illness progresses.  He didn't say anything.  Just looked at me.  But I could see that he wanted to say something.  Wanted to participate in this exchange.

When was the last time I had a conversation with my Dad?  I can't remember.  This disease has been slowly taking his mind and I can't remember when we last spoke without the illness getting in the way.  There was a time in the kitchen, about a year and a half ago, during breakfast, before his meds kicked in, when we talked sweetly, and I reminded him that the reason he forgets and feels confused is because of the Parkinsons.  "Oh really?" he said.  "That's what it is?"  But what about the political sparring we used to do?  What about the long conversations we'd have about life and nature and my kids and growing older?  Once when I was in Canada on vacation on our boat, we talked for so long that I went over my long distance minutes.  I thought my husband was going to have a fit, but I didn't care.  I knew this was precious time.  But I didn't know just how precious.